Libby's Journey of Life
Raising vital funds for life saving research into Ewing sarcoma
Libby’s Story
On the 16th July 2022 Libby and her brother Dylan were visiting family in Grimsby, Lincolnshire. They were playing on Cleethorpes beach when Dylan playfully pushed Libby over and she landed on her hip- this is where Libby's journey began.
Returning home, to Kidderminster in Worcestershire, Libby continued to be in pain so after a trip to both Kidderminster and Worcester A&E departments, we were told she had a pulled muscle and was given ibuprofen and told to wait 'till it had blown over'.
After 2 more weeks of Libby still being in pain we decided it definitely WASN'T a pulled muscle! Another trip to the hospital, Libby had an xray and we were told to go to the bone clinic in two days for the results. At the clinic we were told that not only did she have a fracture in her hip, they had actually picked up something else too. Libby was admitted to Worcester hospital.
On 19th August 2022, our whole world fell apart. We were told that Libby had cancer. She was 8 years old. They later confirmed that she had localised Ewing sarcoma. Libby was discharged from hospital and allowed home in a wheelchair. Unfortunately her time at home was short-lived. Libby found a new love of doing wheelies and soon fell out of her chair.
After the fall she completely broke her hip. She was admitted to Worcester yet again as she had to have her leg put into a support traction. She was eventually transferred to Birmingham children's hospital and there she remained on traction for the next two months. Her central line was then fitted and treatment began.
Libby had her beautiful long hair cut as she decided that she wanted to donate it to The Little Princess Trust before it fell out due to the chemotherapy.
Libby is now halfway through her treatment, but still has a long journey ahead of her with more chemotherapy, radiotherapy and surgery to remove the affected bone.
There has been many ups, downs and delays to treatment due to her being so unwell BUT Libby being the strong, sassy girl that she always is, she has continued to keep everyone around her smiling and laughing!!
After lots of reading and realising that treatment for primary bone cancers hasn't changed in 30 years, because of the lack of funding for research, we decided that we wanted to help change this.
Supporting Libby's Journey of Life
Since Libby's diagnosis of Ewing sarcoma we were shocked to hear less than 1% of funding from the National Cancer Research Institute was used for research into primary bone cancer. We've set up a Special Fund with the Bone Cancer Research Trust to help raise awareness and fund vital research that is so desperately needed for children like Libby.
Whether it's a bake sale, quiz night or running a marathon - we'd love for you to get involved and help us raise as much funds as we can for research into Ewing sarcoma.
News
Bone cancer patient gets involved with Bake it for Bone Cancer from her hospital bed
Charity dinner raises over £42,000 for Libby’s Journey of Life
Research
World-leading Ewing sarcoma clinical trial receives extra funding
Research finds marker to predict prognosis in Ewing sarcoma
Most effective treatment option identified for Ewing sarcoma patients
Fundraising Pages
Libby and our fundraising
Text BCRT LIBBY TO 70800 to give £5
*Text donation costs the donation amount + standard network rate. Libby's Journey of Life will receive 100% of your donation.
You can make a donation or pay in funds raised by cheque, payable to Bone Cancer Research Trust, to Bone Cancer Research Trust, 10 Feast Field, Horsforth, Leeds, LS18 4TJ. Please ensure you make it clear that the donation is for Libby's Journey of Life so that your donation is allocated to the correct fund.
100% of donations to Libby's Journey of Life will go to Ewing sarcoma research.