Sally's Story

Most people associate me with running, wild swimming and being in the great outdoors. I am part of the Mundford Running Group and a regular at Fitcamp with Naomi, a local physical training group . Exercise and fitness are a huge part of my life, my friendships and my identity.

I've ticked off some major running achievements, most recently, RED January where I clocked up over 100 miles and P24 , a crazy challenge where you run 1 mile, on the hour, every hour, for 24 consecutive hours!

During my regular runs I’d noticed my leg was starting to 'niggle’. It had been going on for a while, but I put the pain down to overuse. However, as time went on, I started to experience chronic pain in my thigh, sometimes a sharp pain and at other times a dull ache. The pain initially used to come and go and then became continuous and would be worse at night.

I went to my GP, who referred me for NHS physiotherapy, which wasn't great so I paid for a private osteopath, had sports massages, and even acupuncture. I went through tubes and tubes of ibuprofen gel. I literally tried everything I could think of to stop the pain.

I decided to go back to the GP after a particularly bad night, I couldn't sleep and was sobbing because of the pain.  She looked at my case history, could see I was a fit and active person, and decided something wasn't right. This was in June 2022.

She referred me for an x-ray at my local health centre. I found out later that the radiology team had cancelled the x-ray as they thought it was not necessary and would cost too much money, but luckily for me my GP was persistent. I had the x-ray and was called the same evening and told there was an unusual change in my leg and was asked if I had ever broken my thigh. I was sent to Addenbrooke's Hospital the following day for an MRI scan, and the results showed that the bone in my thigh had thickened and was bowing. A CT scan soon followed to check for metastatic spread. I was referred to the Royal Orthopaedic Hospital in Birmingham for a biopsy.

'Life changed overnight for me and my family.

I didn't realise just how much I took for granted’!

Sally Saunders

Life came to an abrupt halt in August 2022 when the biopsy results confirmed I had a malignant growth in my leg. I was diagnosed with Chondrosarcoma – a rare type of bone cancer.  The pain in my thigh was caused by a 20cm tumour growing in the bone. I am not sure how long it had been growing but I definitely ran some miles on that tumour! Given the size and grade of the tumour, my surgeon wanted to remove the tumour and replace the bone with a metal spacer whilst the custom-built metal prosthesis was constructed.

I had my first surgery on 14th September 2022 to remove the tumour along with most of my thigh bone. The surgery was successful, and the surgeon was able to get good clear margins. I was non weightbearing for five months whilst I waited for my second surgery to remove the spacer and fit my endo-prosthesis.

I had this surgery on 17th February 2023. I recovered better after my second surgery than my first, but my knee did not bend properly. I still have my knee joint, so this has not been affected by my surgery, but it had seized up after being non weightbearing for five months between surgeries.

I have had physiotherapy at Addenbrooke's and attended a week's intensive physiotherapy at ROH I am hopeful my strength and mobility will improve, and I will be able to return to physical activity which I love so much.

I currently have three monthly check-ups (leg and chest x-ray) to check that the cancer hasn't returned or spread. So far, my lungs have remained clear. It looks like the cancer was removed in its entirety during the first surgery.

Supporting Sally's Unstoppable Journey

The aim of my Special Fund is to make people aware of bone cancer and raise much needed funds for the Bone Cancer Research Trust. This is so important to me because I want to do my bit and give something back for all the wonderful support I've received from the BCRT.  

So far, my amazing team of supporters have organised quizzes and fun days, they have climbed Snowdon, taken part in runs, walks and horse rides as well as doing bucket collections, bake sales and so much more! Please join me on my Unstoppable Journey and let's beat bone cancer together!

“I was extremely fortunate that my GP sent me for an x-ray when she did, then my treatment happened so quickly. Raising awareness of symptoms is so important to ensure GPs refer patients for x-rays and scans. Early diagnosis and treatment is vital to make sure patients have more treatment options and better outcomes. Any contribution, however big or small, will be  gratefully received and put to good use. ”

Sally Saunders

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News

Chondrosarcoma patient shows that actions peak louder than words
Dr Sally Fletcher is a scientist at the University of Birmingham who is exploring new therapies for the treatment of chondrosarcoma.
Leading bone cancer scientists form research group to improve surgical techniques

Research

Exploring a new drug target to develop novel combination treatments for Chondrosarcoma
In-depth protein analysis to identify tailored treatments for chondrosarcoma patients
Supporting sample collection through Infrastructure Grants

Fundraising Pages

Text BCRT SALLY TO 70800 to give £5

You can make a donation or pay in funds raised by cheque, payable to Bone Cancer Research Trust, to:

Bone Cancer Research Trust, 10 Feast Field, Horsforth, Leeds, LS18 4TJ.

Please ensure you make it clear that the donation is for Sally's Unstoppable Journey so that your donation is allocated to the correct fund.

100% of donations to Sally's Unstoppable Journey will go towards our life-saving work.